Seroxat Caused my Movement Disorder

“I get involuntary movements and muscle spasms. I also still get electric shocks.”

Six years ago I had been taking Seroxat (Paroxetine) for about 2 weeks, I’d noticed that my hands and arms were twitching and moving -involuntary movements. I told the consultant, he told me it was a side effect of the drug but he still increased the dose by 10mg.within a short time of taking it I became very ill. my whole arms were moving and jerking, my legs moving, feet curling, back arching, neck twisting, head bobbing around, tongue twisting in my mouth it felt swollen, slurred speech.

I was writhing around, I couldn’t stand up, it effected my walking and balance, my eyes kept clamping shut so that I couldn’t open them. I was admitted to hospital. they filled in a yellow card. I was told I’d had a very rare adverse reaction to Seroxat and the Dr’s stopped the drug immediately, I now know it is not recommended to come off Seroxat abruptly but at the time I was too ill to question this.

A neurologist told me that Seroxat had called a condition called Dystonia, I’d never heard of it. I get involuntary movements and muscle spasms. I also still get electric shocks. I have had anemia, bad dreams, worsening of mood etc.

I am still effected by this movement disorder, I still get fizzy sensations in my legs, feet etc, I have problems with too much stimulation – feeling over loaded, sound, vibration, flashing lights etc can all trigger the movements off. When this first happened I couldn’t even hold a cup, I used straws.

I have had great support from my husband. My GP and psychiatrist are both convinced that Seroxat has caused my condition. Both the hospital and my GP have filled in the yellow card. I am a member of a on line support group which has helped me a lot.

cheryl farrelly
cheryl.farrelly2@ntlworld.com

 

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A Cipramil [Celexa] Survivor

“I have lost all contact with my body.”

 

Dear Ann Blake-Tracy and The International Coalition for Drug Awareness

I write to you from Norway, Europe. I am a 52 year old woman, and I want to tell my story about severe adverse reactions to a SSRI drug called Cipramil (Celexa) manufactured in Denmark by a company called Lundbeck.

On the 15th of April 1997 I took my first Cipramil (Celexa) pill. Six days later I had to quit (in agreement with my doctor). During these days I experienced the most terrible kind of “electric surges” throughout my body. It was as if my head was going to blow away. I also got huge bruises on my arms.

After I stopped taking the pills I thought that my body would return to its normal state. BUT IT DID NOT. The “electric surges” continued during the days, weeks and months to come, and soon I am going to celebrate their 1st anniversary. The surges have changed somewhat in character. The center has always been (and still is) in Solar Plexus. Now the sensations are mostly in the stomach region and resembles that of “scratching, burning knives”. These sensations are always there, 24 hours every day, 60 minutes every hour, 60 seconds every minute. My whole body feels “electrified” and “dead”. It feels like the nervous center in Solar Plexus has DIED OUT. There is no more “aliveness” in there. It is transformed into a dead crater. Do you have any idea of how it feels living in this torture? Do you have any idea of what has happened to my nervous system?

I have lost all contact with my body. I can no longer feel hunger. I can stop eating for weeks if I want, and my body give no signals about being hungry. On the contrary, if I want to, I can eat and eat and eat the whole day. My body never gives a sign that my stomach is full and satisfied. Also I no longer have the normal ability to get tired and sleepy. My body has only one way of behaving: the “electrified, dead” way. Day and night. It is as if I walk around like an “electric cable”.

My skin feels “dead”. It has no “human” feeling. I cannot feel the human dimension of a hug, only the technical touch. I have lost the personal smell of my body, the smell that was ME.

But the worst thing (actually it is only another dimension of the complex I have described above) is that I HAVE LOST ALL MY HUMAN EMOTIONAL LIFE. I have no ability to experience any human feeling at all. I cannot be happy, not sad, not angry, not irritated, not interested, not ashamed. Name any human emotion you can: I cannot experience them.

I AM SURE: The Cipramil (Celexa) pills (even if they were only 6) have caused a terrible chemical disaster in my brain and my nervous system. They have destroyed my ability to experience human emotions. They have destroyed the HUMAN part of my life. They have taken away all “ALIVENESS” from my life. I feel totally dead inside me. The physical precondition for my emotional life is destroyed. Will it ever come back? I doubt it. I have no longer a human personality, a human psychic life. I have no longer a SOUL.

As you understand, I exist (I will not use the word LIVE) in terrible torture, physical and psychological. It is impossible to stand it. It is impossible to escape it. What shall I do? I have never been a candidate for suicide, but now I can see no other way out. (I have no problem understanding that an adverse effect of these pills is suicidal tendencies.)

The motor part of the nervous system is intact. The autonomic part of the nervous system is intact. The part of the nervous system that governs the intellectual life is intact. The part of the nervous system that governs the human emotional life is PARALYZED, DEAD. It is in this part the medical/chemical attack has taken place.

The adverse effect that I have experienced is the total paralyzing of my soul. The soul is as important to a human being as the body. The paralyzing of the soul therefore is as serious as if it has occurred to the body. It is impossible for me to act in human life with NO INNER HUMAN “ALIVENESS”.

I used to be an active person. I had husband and children. I liked my job. I traveled around the world as a photographer. Now I am transformed into a human wreck with a totally “dead” life. I lie on a mattress, staring up into the ceiling, trying to think of nothing.

I have no contact with my children. I can no longer live with my husband. It is impossible to be with the people I loved the most and be totally dead inside. I can no longer travel anywhere, I can no longer take my pictures, I can no longer go for a vacation. I cannot visit my friends or go to the movies or theatre. I cannot do anything because I cannot EXPERIENCE anything. I AM NO LONGER A PARTICIPANT IN THE HUMAN LIFE.

So, Ann Blake Tracy, this is my story. Have you heard of anything like this before, or am I the only person in the world experiencing this? (very unlikely, I suppose) Do you think there is any hope? Is there anything I can do? Or am I going to spend the rest of my life in Hell? If so, the SSRI drugs can add another suicide to its adverse list.

I am desperately in need of help, but see no hope.

Note: Because it is important to know that there is hope of getting better you need to know that Bjorg is doing much better now. She flew to America to meet with Dr. Tracy and left with many ideas for alternative treatments she could use. She used many natural alternative treatments and began to feel better right away which gave her hope again and courage to keep working at feeling even better.

Bjorg Johnsen; bjorg.johnsen@dagbladet.no

Years 2000 and Prior

This is Survivor Story number 68.
Total number of stories in current database is 96

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